[1] Stem cell research and somatic cell nuclear transfer (i.e.
therapeutic cloning) were hotly debated in Sweden during autumn of
2001. Two years earlier, in 1999, the Swedish Medical Research
Council had initiated an internal discussion, which resulted in a
proposal for policy guidelines on the topic of stem cell research.
In the year 2000, a new research organization called the Swedish
Research Council (Vetenskapsrådet) took over the policy
preparations. When asked about national guidelines for stem cell
research, the Swedish Minister for Education referred to the
preparations by the Swedish Research Council. No national
guidelines were to be provided before the Swedish Research Council
had published its view, which it did 3 December 2001. Meanwhile,
the debate was intense, especially in one of the major daily
newspapers in Sweden, Dagens Nyheter (www.dn.se). In January 2002,
the Swedish government approved the view of the Swedish Research
Council. It was considered ethically acceptable to gather stem
cells from so-called "spare embryos" (embryos created but not
implanted in the woman's uterus during in vitro fertilisation)
until day 14. Therapeutic cloning was regarded as ethically
acceptable, given that the Swedish law-which until then had banned
such interventions-was changed. Creation of embryos solely for the
purpose of research was not regarded as ethically acceptable.
Thanks to this process, Sweden has one of the most permissive views
of stem cell research and therapeutic cloning in the Western
world.
[2] The extent to which medical experts were allowed to express
their views in the major daily newspaper in Sweden and thus to set
the agenda (despite the explicit statement that this was a question
not only for experts, but also for the general public) has been
investigated elsewhere. The possible bias present in the Dagens
Nyheter, where stem cell researchers were interviewed concerning
the possible benefit of the research, has also been analyzed. It
has been argued that these interviews (and the lack of criticism)
resulted in views of the possibilities of these interventions
(Ideland 2002) that were too optimistic. This could be understood
as one weakness of the Swedish debate. However, this article
focuses on two other weaknesses of the debate.
[3] Medical technologies, such as stem cell research and
therapeutic cloning, create medical possibilities. They open the
door to new therapeutic applications. The controversial embryonic
stem cells can be gathered from spare embryos, as described above.
Therapeutic cloning-the transfer of a cell nucleus into another
cell or embryo-can be performed on an embryo as well as on an egg
cell. With therapeutic cloning, large gains in terms of decreased
risk of rejection of implants are possible. Stem cell research and
therapeutic cloning also evoke several ethical questions.
Nevertheless, a careful analysis of the latter from a Swedish
Lutheran perspective was not performed. The reasons for this are,
of course, manifold. The Swedish Church may take a stand on
bioethical questions, but the authority of such a stand is not
altogether clear. The variety of perspectives within Lutheran
ethics, in substantive as well as methodological questions,
complicates the matter. Furthermore, as phrased by Anselm et al
(May 22, 2002), "the freedom to have your own opinion is a
characteristic of Protestantism. Only in rare cases has the
Protestant tradition required a consensus in interpretations or
unanimity except in fundamental questions of beliefs on which the
Church stands and falls. Questions about lifestyle and ethics
normally do not fall in this category." Whilst this is accurate, it
can hardly be understood as a valid reason for not entering into
the discussion. The lack of theological bioethical discussion is
thus a first weakness of the Swedish debate. Second, some of the
ethical questions concerning stem cell research are evident, such
as the question of the status of the embryo. Unfortunately, within
the Swedish debate, much, if not most, ethical discussion has
centred on this question. If embryos were not seen as morally and
ontologically equivalent to born individuals, or at least not
understood as having consciousness, no or hardly any other ethical
questions were regarded as present (see e.g. Lagercrantz 2002). If
embryos were ontologically and morally equivalent to human
individuals, this was understood as the ethical barrier to medical
research. This, I will argue, is an oversimplification of the
ethical debate, which hides other crucial ethical questions.
[4] The question of whether stem cell research on embryos is
morally acceptable does not receive a simple "yes" or "no"
depending on how we look upon the status of the embryo. Even if
embryos are morally and ontologically understood as equal to human
beings, this need not entail an absolute "no" to stem cell
research. We might argue that once spare embryos exist, they should
not be allowed to perish. With respect for the value of human life,
we might hold that embryos should be used for the sake of other
human beings, in order to mitigate their suffering. This would give
the idea of sacrifice-the giving of life for my fellow being-a new
meaning. Of course, contra-arguments are also present. Use of
embryos may lead to an instrumental view of human life, it may lead
us to a slippery slope, resulting in undesirable future scenarios.
The accuracy of these kinds of arguments-for and against stem cell
research-is not the heart of the matter here, but rather the idea
that ethical question marks are not erased through a certain
understanding of the embryo.
[5] The complexity of the ethical questions can be highlighted
through use of notions such as "broad" and "narrow" ethics. A
narrow ethic, as I will use the notion, focuses on the concrete
clinical intervention. In the concrete clinical context, the
question of the status of embryos becomes important. A broad ethic,
as I use the notion, focuses not only on the concrete clinical
intervention, but also on the surrounding culture and social
structures in which the intervention is discussed and, eventually,
performed. In a broad ethical analysis, questions of a changed
understanding of the conditions of human life as well as of values
in contemporary society become important.
[6] Is it ethically acceptable to use embryos in stem cell
research? This narrow ethical question has broad undertones. What
happens to our understanding of humankind if embryos are allowed to
be used for the purpose of mitigating others' suffering? The
distinction between narrow and broad ethics can also be exemplified
in the discussion of therapeutic cloning. Therapeutic cloning can
be used on egg cells. If so, it may seem as if the major ethical
question of the status of embryos is evaded. An egg cell is not an
embryo. However, broad ethical questions remain. Egg cells can be
retrieved through donation, but such donations are not without
risks for the women concerned. Furthermore, whereas trade with egg
cells is forbidden in Sweden (but voluntary donation is not), this
is not the case everywhere. Internationally, we may risk ending up
in a situation where egg cells become a global market item in an
intricate play between south-east and north-west. It may become
poor women's source of income. These fears may be exaggerated or
unfounded. Nevertheless, it is important to discuss them, and they
highlight the need for a broad ethical analysis.
[7] Stem cell research and therapeutic cloning evoke questions
of how we, as human beings, understand ourselves. Suddenly,
bioethics finds itself at the core of contemporary culture.
Bioethics uncovers cultural values. It becomes as important to
analyse what values use of the technologies presupposes, enhances
or diminishes, as it is to analyse possible consequences for
humankind's self understanding. In the light of this, it is serious
that many debates have been "narrowly" performed. It is also
serious that Lutheran bioethical discussions are not heard. Stem
cell research and therapeutic cloning provide us with new
possibilities. It is high time that these possibilities be
analysed, broadly and from secular as well as theological
perspectives.